I have a rare genitic disorder, unkown. My internal organs,especially my bowels die. I have had 37 open abdominal bowell resections over the last four years. I have been sent home with an open abdomen from the ICU on hospice three times. My brain, kidneys and heart are not affected directly from the disease.
I was in excellent health before the crash, My wife and I were sailing on the Columbia the day I went to the emergency room. I have a doctorate in neuroscience, published with a tenure position. However, After 3 years of the disease, I was on an extreme cocktail of IV morphine, ketamine and versed, plus a myriad od other drugs stabilizing my condition.
I went to LA to a teaching hospital where there was a Surgeon who helped a condition like mine. My disease is more complicated than can be described here. The attending Physician of my pain manement team at the LA hospital decided I needed to be off of all narcotics and sedatives.
My bowels had gone through 32 resections at this time and were so swolen, friable and leaking that my abdomen could not be closed. I was in the ICU when they took off all of my narcotics and seditives over four hours.
I went into a lethal withdrawl, adrenaline storm causing a complete cardiovascular/ respiratory failure. Two emboli found thier way into my lungs from emergent life support interventions. My lung was punctured as well. I went into a psychosis which I am still recovering from.
The fear of pain management interventions causing secondary addiction problems needs to be clearly weighed against the negative perceptions of drug abuse.
Why should I and others suffer horribly because my disease state misery is more socially acceptable than the umbrella of addiction.
I understand that addiction is a severe problem. Many of my finest students have anorexia which can also fall under this umbrella. I
I must go now but will gladly talk and help anyone I can