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Susan38's comments:

on Living with a Brain Tumor

I will keep you in my prayers. You are spot-on about Dr. Neuwelt.  He was my doctor when I received BBBD chemo for 8 months.  It is challenging enough to have a brain tumor, but then to have a doctor who is self absorbed, rude and even childish when you try to get information or deeper understanding about your situation is just insulting.  While this program had limited effects on my tumor, I know it has been a blessing for others.  In the end I had radiation, which he had scoffed at.  Unlike the BBBD tx, I had no significant side effects from the radiation and it stopped the tumor progression.  It has been 10 years now, post-radiation.  Hang in there, cast your fears and burdens on the Lord.  The prayers of many people sustained me through the darkest days.  

posted 3 years, 5 months ago
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