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We love Dr O'Neill as well, he was my surgeon and we sure think so highly of him, he has been sooo great
Thank you Jean-Paul I will also keep you in our prayers

posted 4 years, 11 months ago
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I'm 43 years old a healthy, athletic man. I was diagnosed with a level 4 glioblastoma multiforme. One thing I have to mention is that my wife and I had met with a number of Oncologists and we ended up meeting with who we refer to as the Dr. of death. Dr Edward Neuwelt gave me a prognosis of 2-3 years and stated that he was probably being overly optimistic by saying 3. He continued to elaborate that he can count the number of patients that have survived past 5 years. The entire time he gave us this prognosis he had a smile on his face. He gave us no hope of any kind that we would be able to beat this. We were referred to him because of his track record for extending patients with this diagnosis, quality of life. However, how does someone fight this disease if they think that regardless of what they do the outcome is immient death. Without hope there is no will to fight and try new options of treatment. Who wants to have a team captain that tells you that regardless of what you do you are going to lose?! Where is the incentive to win?! As we have all heard Mental Mind Frame has shown to have a powerful effect on the time frame of survival rate with these life threatening diseases. Those doctors who do not have the social graces or compassion conveyed in speaking to patients should remain behind closed doors in the research lab, so that their words do not have a negative impact on a patient's chances of beating the odds.
I had a surgery on the 24th of April and 90% of the tumor was removed. With the advice of a number of Oncologists, I flew to UCSF Med Center in San Francisco and met with a new team there, to try a new experimental med called Enzostuarin along with the trad method of Chemo(Temodar), and Radiation. The feedback from the 1st phase seems to be very positive. In my condition and the situation here, the last thing I needed is for someone to shut the door on me, Dr. Edward Neuwelt, whom I think is a great Dr. lacks the human/personality skills, My experience with him in the 20 min we met was crushing to myself and my wife. He was more interested in talking about how great of Dr he was rather than what options we had.
I'm a healthy young person with 2 little boys(a 4 year old and a 6mth. old), I'm not ready to go in two years.

posted 4 years, 11 months ago
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