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I know exactly what you are talking about with Dr. N. We have to mentally prepare for our visits to him. It takes weeks to recover emotionally & mentally from our appts. I said EXACTLY the same thing-he was destroying the quality of our lives. My 25 yr old son was diagnosed in May w/a grade 3 anaplastic oligodendroglioma, & given 3 to 5 yrs. Friends we had in the medical field said not to select a dr by personality. Select one who is the best & don't be hung up on bedside manner. But without hope....what do you have? I'm frantic to try to keep my son's morale up & to help him maintain some hope. Thank God we have a huge circle of friends & family, along with an amazing church family. It's taking everything we have to combat the negative effects from Dr N's comments.Thank you for your post, & God bless you! Drs are not gods. They give us their OPINION, based on their interpretation of facts & case histories. But they don't KNOW.

posted 3 years, 7 months ago
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Hi, Signe.

My 25 year old son was diagnosed with an anaplastic oligodendroglioma brain tumor in May. What grade was your tumor given? David's is a 3.

We also are being seen by Dr. Neuwelt. We consider him to be an expert in the treatment of brain tumors, but I have to say that he has been so hard to have as a physician. He didn't give us any hope. Not one shred. I begged him to tell me if anyone had ever gone longer than 3 to 5 years, and he wasn't able to tell us of any with anaplastic oligodendrogliomas that had beaten the odds. I believe that the doctors look at statistics and at case histories, and then they give us their OPINION, based on their interpretation of facts. But  we are praying for a miracle for David. He turned 26 in July...

Thank you for your encouraging post. God bless you!Cindy

posted 3 years, 7 months ago
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